Questions to ask your Stomal Therapy Nurse:

Who is a Stomal Therapy Nurse (STN)

Shortly after your Mitrofanoff procedure you will be introduced to your Stomal Therapy Nurse (STN). A Stomal Therapy Nurse is a fully qualified nurse who has completed further training and qualifications in caring for urology patients with stomas (ie. a Mitrofanoff is a type of stoma). 

A few short days after your operation your STN will come to your hospital room and start speaking to you about:

  • How to look after your indwelling catheters and urine leg bags
  • How to flush your indwelling catheters with saline water
  • How to care for your wound dressings while your body heals

Your STN will be your main point of contact during the 6 weeks recovery period. They will help you with any questions or problems with you may have.

Questions for your STN

There are many different medical reasons why people decide to undergo a Mitrofanoff procedure.  The after care treatment can vary from one person to the next, and what is suitable for one person could be dangerous for another.  We have listed a set of important questions you may wish to ask your STN, and your surgeon regarding what you can expect will happen post surgery, so that you can be prepared the best way possible for when you arrive home. 

  • How much water should you be drinking to keep the catheter tubes flowing freely?
  • What should you do if you see any build up of thick fluid or blood in the tubes?
  • How often should you drain the urine bags?
  • How much urine should you expect to see in the bags?
  • Do you need to measure the urine before emptying the bags, and if so how can you go about this without making a mess?
  • Should you be recording the measurements each time?
  • How can you keep the tubes from twisting in bed?
  • Is there a particular side of your body should you sleep on to help the urine drain freely from your bladder? Wee won't go uphill.
  • How to safely sterilise your catheter tubes and leg bags so you can re-use them throughout the 6 weeks?
  • How can you get more supplies in the event the bags or tubes rupture?
  • Where can you get more wound supplies so you have a ready supply on hand if one comes away from your skin?
  • How soon can you bath or shower after the operation?
  • What should you do if a catheter falls out unexpectedly?
  • What help or assistance will you need from a carer once you are at home?
  • Can the hospital provide in-home care, because travelling will be difficult in the initial few weeks?
  • How soon can you drive after the operation?

All of the above should be also communicated to your surgeon so everyone involved in your post surgical care understands the post care plan. Your surgeon may have some different suggestions which are tailored for your own personal situation and after care requirements.

If it is your child, or a young person in your care who is undergoing the procedure, you may also wish to share information:

  • Your child’s reactions to previous hospitalisations
  • Your child’s emotional reactions to anaesthesia or medical procedures
  • Reactions to skin adhesive tapes such as: Opsite/brown tape/Mefix
  • Reactions to numbing gells when preparing hands, etc, for IV’s - Angel gel, etc.